Mediaplanet sits down with the star of HBO’s hit series True Blood to discuss her boyfriend’s battle with choroideremia.
Mediaplanet: What is the most difficult part about Choroideremia (CHM) for you and EJ?
Deborah Ann Woll: I often feel very helpless. While we can fundraise, try to talk about the disease and help people cope with it, we can’t actually control the trials or their outcome. It’s up to science and nature to decide whether EJ and the other sufferers of this disease will retain their sight. That’s hard for me as an observer to deal with and I imagine even more difficult for those with the condition. I know EJ struggles, especially watching his family go through it. We want to give them their sight back so badly, but there is nothing we can do but hope our fundraising gives the doctors what they need.
MP: What advice do you have for readers affected by vision disorders or impairments?
DAW: Again, I’d say patience and communication. Both from those directly affected by the disease, and indirectly like myself. Let others know what your experience is so that they can understand and help instead of feeling frustrated and alone. For example, in my experience, things take a little longer when traveling with a person who is visually impaired. I used to get frustrated and nervous about getting where we needed to be and started to feel like a chaperone instead of a partner. I finally expressed my worries and we agreed that neither of us wanted to feel like a burden, so now we leave more time, get access to the handicap TSA line and pre-board the plane so that he has as much time as necessary to settle in. This way, he is in charge of himself and I’m not worried that we are holding people up or are going to miss our flight. We will probably be tweaking things like this forever—and that’s a good thing.
MP: How can readers get involved in raising awareness for CHM?
DAW: Anything helps. Even a simple retweet can go a long way. Most of our fundraising comes in lots of small doses from generous people just like you and me.
Read the full interview at VisionandHearingNews.com
HBO has firmed up the debut dates for the last season of True Blood. The premiere will hit the air on Sunday, June 22, at 9 p.m. and it will consist on 10 final episodes.
Hot on the heels of the black-and-white short, which has racked up more than 66 million YouTube views since its release on March 10, Pilieva has posted a clip on YouTube of her next project. “Forever tells the story of a young investigative reporter [True Blood's Deborah Ann Woll] who, following a tragic loss, enters into a mysterious commune where she learns to live and love again,” says Pilieva. She directed and co-wrote the film with Gill Dennis.
Forever features an ensemble cast including Woll, Luke Grimes, Ioan Gruffudd and Rain Phoenix. The film is produced by nonprofit organization The Art of Elysium and is currently being discussed to premiere at upcoming film festivals.
Today is Deborah Ann Woll’s birthday, and I would like to wish on behalf of ‘I Heart Deborah’ a very happy birthday! Let your birthday wishes on our comments, or on DAW’s official twitter: @deborah_annwoll
Luke Grimes, who joined the HBO hit in Season 6 as Jessica’s vamp-camp lover James, has unexpectedly left the series, TVLine has learned exclusively.
When reached for comment, an HBO spokesperson confirmed Grimes’ exit, saying, “The role of James is being recast due to the creative direction of the character.”
Grimes’ rep declined to comment, but a source close to the Brothers & Sisters alum tells TVLine that the actor asked to be let out of his contract after he learned what producers had in store for James in Season 7. “He initially joined the show because he wanted to work with [his Forever co-star] Deborah Ann Woll,” says the insider. “But when he started reading the scripts for Season 7, he was disappointed to learn that they were going in a completely different direction with James.”